Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
August 19, 2024

“It was cancer the entire time. But no one believed me.”

Read Laurie's Story
Read the White Paper
Patients
December 14, 2023

“I don’t have time for the usual teenage things. That’s all small stuff, anyway!”

Read Emma June & Jamie's Story
Read the White Paper
Patient + Caregiver
November 27, 2023

“He is the Dad I wish I could give everyone on the planet.”

Read Paige's Story
Read the White Paper
Caregivers
Professionals
November 2, 2023

"I didn't want my life to end without living it first."

Read Ella's Story
Read the White Paper
Patients
July 16, 2023

“It wasn’t supposed to happen. But somebody has to be the 2%”

Read Katie & Nick's Story
Read the White Paper
Patients
Caregivers
June 8, 2023

“I was given three years to live. 28 years later, I’m still here.”

Read Mel's Story
Read the White Paper
Patients
June 2, 2023

Part I: "She never lost her smile"

Read Marcelo's Story
Read the White Paper
Caregivers
June 2, 2023

Part II: "DIPG is not a rare disease. It's a neglected disease."

Read Marcelo's Story
Read the White Paper
Caregivers
May 23, 2023

“You have two choices: be in the ground, or live as much of this life as you can”

Read Jim's Story
Read the White Paper
Patients
May 18, 2023

“We need to approach anorexia with more humility"

Read Dawn's Story
Read the White Paper
Professionals
May 12, 2023

“I was doing it all: Mom, wife, caregiver, employee. I was running on empty.”

Read Maureen's Story
Read the White Paper
Caregivers
May 12, 2023

“There’s a southern saying, ‘Don’t borrow worry.’ But it’s all still very sobering.”

Read Ashley's Story
Read the White Paper
Patients
May 3, 2023

"We’ve been told several times there's no roadmap for where we're going..."

Read Kristin's Story
Read the White Paper
Caregivers
April 26, 2023

"Physically I feel good, but mentally, I’m like, what is my purpose?"

Read Sierra's Story
Read the White Paper
Patients
March 27, 2023

“We’re told to listen to our doctors, but sometimes we need to have the doctors listen to us.”

Read Angela's Story
Read the White Paper
Patients
March 23, 2023

“If I could make the experience less scary for someone, I was willing to be the cancer girl.”

Read Jessi's Story
Read the White Paper
Patients

White Paper: Modernizing Pediatric Clinical Trials for the 21st Century Cures Act

Read Marcelo's Story
Read the White Paper
Professionals
Join our newsletter

Stay updated on the latest stories from the portrait project